Health and Wellness

Gentic Anemia

Vidha Kulkarni
0 to 1 years

Created by
Updated on Mar 04, 2017

Have any one is dealing with genetic anemia in child. My 7 month old has Diamond blackfan anemia. A type of rarest genetic anemia.

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ranjani sinha

| Mar 06, 2017

blood transfusion every time

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vidha kulkarni

| Mar 05, 2017

from 6 to 23 how you manage HB. by blood transfusions or steroid.

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vidha kulkarni

| Mar 05, 2017

thanks for information.

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ranjani sinha

| Mar 05, 2017

bmt is done in aiims. my father in army so I treated in army hospital. bmt is also treated in baglore but I don't know clearly in which hospital

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ranjani sinha

| Mar 05, 2017

after treatment u have to take so much precaution for ur baby. no outside visit. only boiled food given and 1 to 2 year Dr. observe ur baby every month that the doner cells properly work or not. vaccination is also given again after bmt and one more thing that bmt is so costly

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ranjani sinha

| Mar 05, 2017

hiii vidha, I have this problem from the age of 6 year but that time bmt is not done in India. I got the treatment at the age of 23. my sister donate me stem cells.

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vidha kulkarni

| Mar 04, 2017

sorry ranjani. misspell your name

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vidha kulkarni

| Mar 04, 2017

rajni in what age you go through BMT. what are precautions should be taken after this

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vidha kulkarni

| Mar 04, 2017

thanks rajni. there are millions of questions in my mind regarding BMT. why where when .l have to take care of my elder son also. please guide me.

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ranjani sinha

| Mar 04, 2017

hello vidha, I don't know about genetic anemia but in past I suffer from aplastic anemia. in this I have the prblm of reduced blood cell. I'll treated with bone marrow transplant. if u need any suggestions in this u can ask me.

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vidha kulkarni

| Mar 04, 2017

thanks puloma. I want to know what are the other methods of treatment other than steroid

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puloma pandey

| Mar 04, 2017

hi vidha, Diamond-Blackfan anemia is a disorder of the bone marrow. The major function of bone marrow is to produce new blood cells. In Diamond-Blackfan anemia, the bone marrow malfunctions and fails to make enough red blood cells, which carry oxygen to the body's tissues. The resulting shortage of red blood cells (anemia) usually becomes apparent during the first year of life. Symptoms of anemia include fatigue, weakness, and an abnormally pale appearance (pallor).

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